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Sickle Cell Disease Association of America
sicklecelldisease.org
 

Rubinstein Taybi Syndrome Support Group (UK)
rtsuk.org
 

Cooley s Anemia Foundation
cooleysanemia.org
 

Shwachman-Diamond Syndrome International
shwachman-diamond.org
 

FightSMA
fightsma.org
 

SMA Support Inc.
smasupport.com
 

The American Sickle Cell Anemia Association
ascaa.org
 

Ben s Dream
bensdream.org
 

Jonah s Just Begun
jonahsjustbegun.org
 

The Sanfilippo Children s Research Foundation
alifeforelisa.org
 

Rubinstein-Taybi Syndrome
rubinstein-taybi.com
 

Thalassemia Support Foundation
helpthals.org
 

RTS Canada
rtscanada.org
 

Hemoglobal
hemoglobal.org
 

Smith-Lemli-Opitz/RSH Foundation
smithlemliopitz.org
 

PRISMS (Parents and Researchers Interested in Smit
prisms.org
 

Sotos Syndrome Support Association
sotossyndrome.org
 

Sotos Syndrome Support Association of Canada
sssac.com
 

Families of SMA (Spinal Muscular Atrophy)
fsma.org
 

Special Friends Foundation
specialfriends.org
 

Children s Medical Research Foundation
curekirby.org
 

Frankiepants
frankiepants.com
 

Spinal Muscular Atrophy Foundation
smafoundation.org
 

The Sturge-Weber Foundation
sturge-weber.org
 

Sturge-Weber Foundation (Canada)
sturge-weber.ca
 

Sturge-Weber Syndrome Community
swscommunity.org
 

Alström Syndrome
alstrom.org
 

National Tay-Sachs and Allied Diseases Associatio
ntsad.org
 

Project Shui
projectshui.com
 

Children s Hospital Oakland Thalassemia Center
thalassemia.com
 
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