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Orphanet: RAPADILINO Syndrome
orpha.net
 

Osteogenesis Imperfecta Foundation
oif.org
 

PKD Foundation
pkdcure.org
 

Prader-Willi Syndrome Association | USA
pwsausa.org
+1 941-312-0400
1032 E Brandon BLVD #4744, Brandon,Florida, 33511

The Foundation for Prader-Willi Research
fpwr.org
 

Pkdiet
pkdiet.com
 

Retinoschisis Sequence Variation Database
dmd.nl
 

National Niemann-Pick Disease Foundation
nnpdf.org
 

National PKU News
pkunews.org
 

PXE International
pxe.org
 

Osteogenesis Imperfecta Information
ptialaska.net
 

Pitt Hopkins Research Foundation
pitthopkins.org
 

PKS Kids
pkskids.net
 

Prune Belly Syndrome Network
prunebelly.org
 

Ara Parseghian Medical Research Foundation
parseghian.org
 

Foundation for Prader Willi Research Canada
fpwr.ca
 

Propionic Acidemia Foundation
pafoundation.com
 

Latham Centers
lathamcenters.org
 

Brittle Bone Society
brittlebone.org
 

Prader-Willi Alliance of New York
prader-willi.org
 

Propionic Acidemia Research Network
paresearch.org
 

Think Again Think NP-C campaign
think-npc.com
 

International Niemann-Pick Disease Alliance
inpda.org
 

Osteogenesis Imperfecta Federation Europe
oife.org
 

European Porphyria Initiative
porphyria-europe.com
 

Jacob s Reach
jacob-quinn.com
 

Children s Brittle Bone Foundation Website
cbbf.org
 

Osteopetrosis
osteopetrosis.org
 

Proteus Syndrome Foundation
proteus-syndrome.org
 

RS links
diercks.net
 
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